Tuesday, July 15, 2014
My Connection to Disability (A Summer Blog Hop Post)
I'm going to give this blog hop thing a try. One, because I literally bumped into Meriah at the NDSC Conference last weekend, but she was running after her kid, and I was running after mine, and also her blog is awesome and I am shy.
And two, because I am clearly not thinking up enough things to blog about on my own. Writing prompts sound like a good idea.
So, the first topic is "My Connection to Disability." Short answer? My son has Down syndrome.
But, I am also aware that my connector is a one-year-old. At this point, at least, it's sort of a one-way conversation.
I've met some great folks through our local Down syndrome group -- mostly parents of young children. I've enjoyed reading blogs -- mostly written by moms like me who are brand new to the world of disability. And we've got a lot to share, and I'm thankful for these connections. But I often feel that I'm not "connected" to disability, I am orbiting around it.
I hope to change that. I need other windows into Down syndrome aside from my own son. And he needs adults with Down syndrome in his life--folks who can prop him up when I've reached the end of my experience. Folks who can tell him, it's okay, I did this, you can, too.
So my connection to disability is still a work in progress. It's a connection inspired by my son, but I do hope it won't continue to be defined only by him.