Friday, October 31, 2014

31 for 21: Imagination

I think I've posted about this before, but as we reach the end of our month I think it deserves repeating.  Every now and then, the interwebs are good for my imagination.  And that is why I joined in to the 31 for 21 challenge this year.

I haven't spent as much time reading blogs about Down syndrome lately as I did that first year.  But I've tried to make the rounds through the 31 for 21 participants this month.  As before, it is fun to just see the variety of families represented.  Some feel like kindred spirits, others I probably wouldn't have read if it weren't for the Ds connection.  Seeing so many options of what families with special needs children can look like keeps me from settling in to one idea of what Down syndrome will look like in our life.  Peeking at other families keeps my imagination healthy.  Sometimes I'm inspired, and take away an idea or a hope of "Yes! I can do that!"  But most of the time I don't really want to copy what anyone else is doing.  I'm just happy know that our family fits in to the mosaic, one of many.  We're just figuring out one way of the many, many ways to walk this path.

I write because I have fun writing, and I have fun sharing about my family.  But I also write to give back to the internet community a bit.  For all the ways other blogs have expanded my imagination, I offer a picture of our life in hopes of returning the favor.

So for the past month I tried to take on the challenge of sharing us consistently -- the worries, the achievements, the celebrations, the everyday.  I don't think there's anything unusual or interesting or inspiring about our family.  But we are one of many, and so we are a part of something special.

Thursday, October 30, 2014

31 for 21: And Again

Another skipped day yesterday.  Oh well, my track record has been pretty good this year.  Again, I blame it on the Royals.  I really hoped to post a "yay Royals" post after the game last night.  But then, they lost, and I just didn't have the energy to bother with it.  After staying up late for the game we are all a bit low on energy this morning.  Thank goodness that I took way too many cute photos at the pumpkin patch this weekend.  I'm getting a lot of mileage out of them.

If I can pull myself together I'll try to make a real post, with real opinions & stuff, for the final day of October.

I might be tired & a bit sad for my Royals today, but it was totally worth it to see them in the World Series.  I'm already looking forward to 2043 when they can do it again!

Tuesday, October 28, 2014

31 for 21: I Almost Forgot

But I didn't.  So here's my post.

Yes, you know it's the end of the month when this sort of slack counts as a post.  But whatever.

If you need me, I'll be watching baseball.  Go Royals!

Monday, October 27, 2014

31 for 21: Following

Keeping a closer eye on the internet's Down syndrome community this month means that I've caught a few references to an article written by a mother of a 50-year old with Ds.  According to the headline, even today, she thinks abortion would have been an easier road than raising her son.

I haven't clicked that link.  Maybe because the sensational headline feels like click-bait.  Maybe because I'm not sure what there is for me to learn from someone harboring that sort of regret.  Maybe because the whole issue is so seeped in politics that I don't trust the internet to contain such sadness.  Maybe because I don't want to revel in self-righteousness after reading a short statement out of a life I have not lived.

But I did click on this link, this response.  And I'm glad I did.  It's an incredibly well-written reminder of how difficult it is to walk in another mother's shoes.  And it's a reminder to all of us touched by disability to remember the debt we owe to previous generations.

I'm thankful for those who went before us.  Who made it possible for me to bring my son home, who opened the doors of our neighborhood school, who insisted that he has a place as an adult in our community.  They didn't always know they were pioneers at the time.  Like most of us, they were just stumbling along trying to do the best they could for their kids.  Often while the world around them was telling them that their kid didn't deserve the best.

Someday, perhaps, I will be more open myself to hearing the stories of the parents who sent their children away.  For now, I am thankful for the parents -- sometimes flawed and all-too-human -- who made my son's road, and by extension my road, a bit wider.

Sunday, October 26, 2014

31 for 21: Google GIFs

More fall fun this weekend, more photo ops:

I don't think I'll ever get tired of google turning my photo shoots into gifs:

Saturday, October 25, 2014

31 for 21: Oops

Oops!  I finally missed a day.  Just plum forgot about it.  Funny, I remembered to post when we were sick, but I forgot on a lazy Friday evening.

My only excuse is that I was watching the Royals instead.  After TV fails and radio fails and sleep fails, this was the first post-season game I was able to watch.  Go Royals!

As penance, I give you the obligatory fall raking photo:

Thursday, October 23, 2014

31 for 21: Papa

Whew.  Okay, I think we are all through with that particular wave of illness.  Here's hoping for a few days of respite before the next one hits.

It occurred to me that I might not have given Christer full credit in Tuesday's post for all he does to help mitigate the worry -- both in his care of Max and in his care of me.  And if you noticed that he was absent this round of sick-baby-care and subsequent worry, you would be right.  That is because he was busy having dinner with this guy:

Um, yeah, I was not going to call him in the middle of meeting Neil DeGrass Tyson to say, "Your baby is sick, come home."

(Okay, maybe I did text him the first part, because I needed some sympathy, but I can totally handle a few hours of puke while Christer's off having an experience.  Really.)

Truth is, the last couple of times Max was sick, Christer stepped up and dealt with most of the unpleasantness.  Because I was too busy working myself into a worried tizzy to be much use.  And when I do worry about the Big Future Worries, my fastest relief comes from the thought that I've got this guy with me every step of the way.  Some days we have no idea where we're going, but at least we're in it together.